Advocate Of Hope

Has your child received a diagnosis?

If you are someone who is now on this journey following a diagnosis of disability, autism, or other additional needs in a child, I want to encourage you. And if you’re still waiting, what I’m going to say will help for when the time comes.

When you first hear a diagnosis, the range of emotions you might experience is vast and varied. You might have felt a wave of sadness, mourning the future you had envisioned for your child and your family. It’s natural to grieve for the dreams that now seem distant or different.

There might be moments of blame or asking “Why us?” It’s a common thought, where the search for reasons often leaves us feeling more lost, and then there’s the worry about the future – what does it hold for my child, for us as a family?

Amidst these swirling emotions, you may have also felt relief. Finally, there’s a name for the challenges you’ve been facing, an explanation for the concerns that kept you awake at night, and despite what others said, it wasn’t your fault after all! 

I hope this diagnosis hopefully opens doors to support and understanding, to communities of professionals and families who stand ready to help, though that might not always be the case, and you will need to persevere.

This new chapter does come with its own set of challenges. Information overload, conflicting advice, and the pressure to make immediate decisions can feel overwhelming. The support system you have—or lack of—can significantly impact how you navigate this journey. 

There is no manual for how to feel, and every emotion you experience is valid. Embracing these feelings, rather than pushing them away, is a crucial step towards healing and moving forward.

So, how do we navigate this complex tapestry of emotions and responsibilities?

First, by accepting that your feelings are part of this journey. They remind you of your love, your fears, and your hopes for your child’s future. Allow yourself to feel, to grieve, and to dream again.

Be kind to yourself. Remind yourself daily that you are doing the best you can under circumstances that you didn’t choose but are bravely facing. Self-care enables us to be there for your child in the way they deserve.

Connect with others who walk a similar path; follow this blog, my TikTok /Instagram channels and sources like them. There is incredible strength in shared experiences, in knowing you’re not alone in your feelings and challenges.

And when it comes to your children, let’s celebrate them. Avoid the trap of comparison. Each child is unique, with their own set of milestones and achievements worth celebrating.  Focus on the joy of the moments you share, the progress they make, and the endless possibilities that lie ahead.

Lastly, remember, that seeking support is a sign of strength. Lean on friends, family, and community resources. You don’t have to do this alone.

If you’re still reading this, know that your journey is seen, your challenges are acknowledged, and your strength is admired. Together, we can navigate this path, support our children in reaching their fullest potential, and find joy in the journey.

Thank you for being here, but above all thank you for your unwavering love and dedication to your children.  Let’s continue to support one another, share our stories, and build a community of strength and understanding.